The Association for Retinopathy of 
Prematurity and Related Diseases

 May 11, 2008 

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Bibliography

Check out our feature recommendations and explore the links below to find great books recommended by the ROPARD staff. 

Because of a partnership with Amazon, if you click on a link from our website you can order your book and at no extra cost to you and ROPARD will benefit.

Your purchase counts! ROPARD will receive 5--15% of the selling price of each item you buy which is not out-of-print or an auction item.

Most of the books listed here are specifically about children with visual impairments. Those books are listed in bold print. You may find the other "general" books helpful.


After the Tears:  Raising A Child With A Disability  

by Robin Simons

Discusses a variety of issues including:  guilt and anger, marital stress, chronic sorrow, working with school systems and meeting your own needs.

 


Are You Blind?  by Lilli Nielsen

This book addresses children who are autistic and visually impaired and describes Dr. Nielsen's educational method.

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342.  Email: Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark or FAX +45 33 92 46 79


Beginnings: A Practical Guide for Parents and Teachers of Visually Impaired Babies.

by Sheri Moore. American Printing House for the Blind #7-1171.

An excellent resource which provides a wealth of information and suggestions for activities based on developmental level.


Braille for the Sighted

An introduction to braille done in a puzzle and game format.

Garlic Press, 605 Powers Street,                 Eugene, OR  97402
               www.garlicpress.com

 


Bright Beginnings: An Orientation to Parent/Child Courses. The Hadley School for the Blind. I- 800-323-2496.

The introductory booklet for a home course of study for parents of visually impaired children. The entire course is free.

Book graphic.gif (3898 bytes)Building Blocks : Foundations for... Learning for Young Blind and Visually Impaired Children. by Betty and Joe Dominguez. Spanish and English

Overview of services available for preschool visually impaired children. Includes sections on art, computers, cooking and group activities. Several useful appendices.


Book graphic.gif (3898 bytes)Can't Your Child See? : A Guide for... Parents of Visually Impaired Children. by Eileen P. Scott, James E. Jan, and Roger D. Freeman. Pro-Ed, 5314 Industrial Oaks Blvd., Austin, TX 78735.

Excellent guide for parents of visually and multiply handicapped children from infancy to kindergarten.

 


Children With Cerebral Palsy : A... Parents' Guide.
by Elaine Geralis.

A truly comprehensive book which deals with all aspects of Cerebral Palsy in young children, including diagnosis, treatment, intervention and advocacy.

 


Children with Disabilities: A Medical Primer by Mark L. Batshaw, M.D. and Yvonne M. Perret, Paul H. Brookes, 1993.

Comprehensive book written in laymen's terms which discusses everythng from problem pregnancies to a wide diversity of disabilities found in children.

 

 


Book graphic.gif (3898 bytes)Children With Visual Impairments : A... Parent's Guide by Cay Holbrook

Addresses the issues parents of visually impaired children face, and has personal comments at the end of each chapter.

 


Comprehending Hand, The by Lilli Nielsen

An exceptional book for parents whose children have additional impairments.

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342.   Email:

Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark or FAX +45 33 92 46 79


Dear Zoe: Letters to my Miracle... by Max De Pree, Harper Collins, 1994

An insightful look at the emotions and confusion that families experience when a child is born with comlications.

 

 


Early Learning Step by Step, by Lilli Nielsen.

Although this book is meant for parents of children who are blind with additional impairments, it is an excellent resource for any parent of a visually impaired child. Dr. Nielsen's common sense approach and her philosophy of Active Learning should be a critical part of the education of parents and teachers.

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342. Email:  Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark- or FAX +45 33 92 46 79


Fiela Curriculum, The.   by Lilli Nielsen.

A guide for parents and professionals to help establish optimal learning conditions for children at the developmental levels of 1 - 42 months.

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342.  Email:  Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark or FAX +45 33 92 46 79


Book graphic.gif (3898 bytes)Get a Wiggle on by Sherry Raynor and Richard Drouillard.   Blind Children's Fund, 4740 Okemos Road, Okemos, MI  48864

Booklet designed for parents of visually impaired infants/toddler with suggestions and illustrations for assisting the child in development from birth to independent mobility.

 


Book graphic.gif (3898 bytes)Help Me Become Everything I Can Be :... by Mary Ellen Mullholland, Marion Wurster, Ed.  Proceedings North American Conference on Visually Handicapped Infants and Preschool Children.  Minneapolis, MN

Parent guide for fostering independence in visually impaired children.

 


Book graphic.gif (3898 bytes)How to Thrive, Not Just Survive : A... Guide to Developing Life Skills for Blind and Visually Impaired Children and Youth. American Foundation for the Blind.

Addresses daily living skills, orientation and mobility and leisure recreation activities in a practical, sequential manner.

 


Book graphic.gif (3898 bytes)Insights from the blind by Selma Fraiberg.

Directed toward the professional educator, this book is also a fascinating account of the  development of the very  young blind child.  Parents seeking in-depth answers to questions about early development can benefit from the report of ten years of research with blind children.


Just Enough to Know Better: A Braille... Primer by Eileen Curran.

6th Edition of a resource for parents of blind children to learn Braille by sight.

 

 

 


Learning Together: A Parent Guide to Socially-Based Routines For Visually Impaired Infants. by Deborah Chen, Clare Taylor Friedman, and Gail Calvello. Blind Babies Foundation, 50 Oak Street, Room 102, San Francisco, CA 94102.

Home activities developed through the PAVII Project. Breaks down methods of instruction for parents and provides many activities for the visually impaired young child.


Book graphic.gif (3898 bytes)Lessons With A Child Who Is Blind:  Development and Early Intervention in the First Years of Life by Michael Brambring

Done in a letter format from the teacher to the parents, this book contains wonderful insights and photographs.


Look at It This Way : Toys and... Activities for Children with  a Visual Impairment by Roma Lear

Part of the Play Can Help Series


Book graphic.gif (3898 bytes)Move It!!! by Sherry Raynor and Richard Drouillard.   Blind Children's Fund, 4740 Okemos Road, Okemos, MI  48864

Companion booklet to Get A Wiggle On designed for parents of visually impaired infants/toddler with suggestions and illustrations for assisting the child in development from birth to independent mobility.

 


Book graphic.gif (3898 bytes)Parenting Preschoolers : Suggestions for... Raising Young Blind and Visually Impaired Children. By Kay Alicyn Ferrell. American Foundation for the Blind.

Answers to many of the questions parents of visually impaired children raise.

 


Book graphic.gif (3898 bytes)Preschool Vision Stimulation : It's More... Than a Flashlight! by Lois Harrel and Nancy Akeson. American Foundation for the Blind.

A definitive breakdown of early visual development with activities to enhance visual functioning.

 


Book graphic.gif (3898 bytes)Raising the Young Blind Child : A Guide... by Shulamith Kastein, Isabelle Spaulding and Battia Scharf. Human Services Press, 72 Fifth Avenue, New York, NY 10011.

Written for parents and educators this book guides the reader through the day-to-day situations of caring for, and educating, a young visually handicapped child. Special emphasis is placed on the developmental tasks of early childhood and how parents can provide a stimulating environment for the child who cannot see.


Book graphic.gif (3898 bytes)Reach Out and Teach : Meeting the... Training Needs of Parents of Visually and Multiply Handicapped Young Children. by Kay Alicyn Ferrell. American Foundation for the Blind.

Parent Handbook and Reachbook direct parents through a self-guided course in helping their visually impaired/multiply impaired child.


Book graphic.gif (3898 bytes)Show Me How : A Manual for Parents of... of Preschool Visually Impaired and Blind Children. by Mary S. Brennan. American Foundation for the Blind.

Activities for the visually impaired child, broken down by year.

 


Book graphic.gif (3898 bytes)Simon Says Is Not the Only Game. by Bernadette Leary and Margaret von Schneden. American Foundation for the Blind. 

An accumulation of games that work, contributed by teachers and orientation and mobility specialists.

 


Book graphic.gif (3898 bytes)Small Victories:  Conversations about Prematurity, Disability, Vision Loss and Success by Mary Lou Dickerson.  American Foundation for the Blind.

The individual accounts of adults who were born prematurely. 

 


Space and Self.  by Lilli Nielsen

This book discusses the use of the "Little Room" to enhance development of sensory integration, object conceptualization, self-identification and early spatial relations.

email:  Kathleen@visionkits.com

To see one Mom's personal experiences with a Little Room visit:

http://members.aol.com/LSWebDesgn/LNroom.html

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342.   Email:  Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark or FAX +45 33 92 46 79


Toilet Habits: Suggestions for Training a Child Who Is Blind. by Pauline M. Moor. American Foundation for the Blind.

A concise booklet which provides tips on toilet training, including 12 guidelines for success. 


Touch the Stars by Noreen Grice

Touch the Stars brings the universe to visually-impaired readers and others. Written by Noreen Grice, Education Associate of the Museum of Science's Charles Hayden Planetarium, this general-level astronomy book covers topics from the history of astronomy to constellations, the solar system, and galaxies.

Visual Impairment - Understanding the Needs of Young Children About the Psycho-Social and Perceptual-Motor Needs of Infants and Young Children.  by J. van der Poel

A guide for the interdisciplinary partnership to promote early development in children with visual impairments.

Can be purchased in the United States and Canada through Vision Associates, 7512 Dr Phillips Blvd, #50-316, Orlando, Florida 32819, (407) 352-1200 or FAX (407) 352-56342.  Email:  Kathleen@visionkits.com

In countries outside of North America, this book can be purchased from SIKON, Holmens Kanal 22, 1060 Copenhagen K, Denmark or FAX +45 33 92 46 79


SPECIAL BOOKS YOU MAY WISH TO HAVE FOR YOUR HOME LIBRARY -Books for and about Blind Children and Adults: 

Because of a partnership with Amazon, if you click on a link from our website you can order your book and at no extra cost to you and ROPARD will benefit.  

Your purchase counts! ROPARD will receive 5--15% of the selling price of each item you buy which is not out-of-print or an auction item.

Most of the books listed here are novels where the main character is a child with a visual impairment. Those books are listed in  bold print. 


And There Was Light : Autobiography of...

The true story of an eighteen year old blind French boy who led a resistance fight in France against the Nazis.

 


Because of Winn Dixie by Kate DiCamillo

A story of friendships between a young girl, a dog she finds at Winn-Dixie and an elderly visually impaired woman.

 


Beyond the Stares

Written for children and adolescents by the siblings of children who are blind or visually impaired.  This book shares the stories of these youngsters and the emotions they feel about their visually impaired sibling.

Delta Gamma Center, 5030 McRee, St. Louis, MO 63110, (314) 776-1300
www.dgckids.org


Book graphic.gif (3898 bytes)A Cane in Her Hand (Concept Book) by Ada B. Litchfield

A wonderful children's story about a girl
who is visually impaired (but not blind)
and who must use a white cane.


Book graphic.gif (3898 bytes)Coming to Terms by Rose Bevins

Twelve-year-old Gina Mendoza is angry when she has to entertain a 13-year-old blind boy. How is she supposed to act?  Before the weekend is over, Ricky is a hero, and Gina learns that coming to terms with things that are difficult can be the key to success.

 


Book graphic.gif (3898 bytes)Child of the Silent Night by Edith Fisher Hunter

The biography of Laura Bridgman, born
 both deaf and blind in the early
 nineteenth century.


Book graphic.gif (3898 bytes)   Emma and I by Sheila Hocken

The autobiography of a woman and her guide dog and her experiences both as a blind person and one who has her vision restored.

 


Follow My Leader by James B. Garfield

Although the training of a guide dog is explained well in this book, it gives the false impression that an eleven year old can acquire a guide dog.

 

 


Granny Torrelli Makes Soup by Sharon Creech.

A tale which unfolds when Granny and her granddaughter Rosie talk about life's lessons, including Rosie's friendship with a blind boy named Bailey.

 


Book graphic.gif (3898 bytes) Half the Battle by Lynn Hall

A story told from the unique perspective of the sibling of a blind child.

 


Book graphic.gif (3898 bytes)Happy Birthday, Grampie (Picture Puffins) by Susan Pearson

Similar in concept to Lucy’s Picture, it is
 the story of a young girl who finds a way
 to make a meaningful birthday card for
 her blind grandfather.


Hello, Goodbye, I Love You by Pamela Mueller.

The story of a young boy who raises a guide dog and the person the dog is given to.

 

 


How Do I Kiss A Blind Girl? by Sally Wagner

An autobiographical novel which discusses what to say and what not to say to a blind person.  Ms. Wagner describes the loss of her vision and her adjustments to total blindness.


Book graphic.gif (3898 bytes)If Blindness Strikes : Don't Strike Out... A Lively Look At Living with a Visual Impairment by Margaret Smith

This is an excellent book which deals with the normal activities of everyday life and how Margaret Smith adapted her life to compensate for her blindness.  Margaret was an extremely active, outdoorsy person and this book gives her common sense approach to enjoying life with blindness.


Book graphic.gif (3898 bytes)If You Could See What I Hear by Tom Sullivan

An autobiography of a man who was born
with Retinopathy of Prematurity (then
known as Retrolental Fibroplasia) and his
youthful activities.


Knots on a Counting Rope by Bill Martin Jr. and John Archambault.

In this wonderful story about a young American Indian boy the counting rope is the symbol for the passage of time and for the growth of the boy's self confidence,
regardless of his blindness.


Let's Learn Shapes with Shapely-CAL by Shirley Keller and Irma Goldberg

A book of poetry in large print and braille that introduces children to basic, and not-so
                                basic shapes.

 

 


Book graphic.gif (3898 bytes)Louis Braille : The Blind Boy Who Wanted... to Read by Dennis Fradin
Remarkable Children's Books Series

An historical overview of Braille’s life with emphasis on his education and his encounter with Captain Charles Barbier who had invented a form of night writing and how Louis Braille took that system and developed it into a method of reading for the blind.


Book graphic.gif (3898 bytes)Loving Rachel:  A Family's Journey From Grief by Jane Bernstein

The true story of a family who discovers
 their second daughter is blind and
 mentally retarded.


Lucy's Picture by Nicola Moon

The story of a preschooler who makes a tactile picture for her visiting grandfather who is blind.

 

 

 


Lumber Camp Library by Natalie Kinsey-Warnock.

Set in 1912 this is the story of a young girl who begins reading to an older blind woman and eventually teaches others to read.

 

 


Mandy Sue Day by Roberta Karim

Mandy gets a day off from home schooling to spend with her horse.  The surprise ending lets the reader know that Mandy is blind.

 

 


Book graphic.gif (3898 bytes)Mom Can't See Me by Sally Hobart Alexander

A wonderful book of photographs of the
 author doing everyday tasks, and told
 through the voice of her nine year old
 daughter.


My Baby Brother's Eyes by Jane Jones

Written by a mother to help her young daughter understand her little brother's vision impairment.  Self published:  Jane Jones, 590 Cumberland Place, Nanimo, British Columbia, V9T 4S5, Canada, (250) 751-8141


My Fake Eye:  The Story of my Prosthesis by Nancy Chernus-Mansfield and Marilyn Horn.

A photo history of a young boy with Retinoblastoma.  Told in the child's own words, the story starts with the diagnosis, and goes through the enucleation of his eye and the acquisition of his prosthesis.


Book graphic.gif (3898 bytes) Naomi Knows It's Springtime by Virginia L. Kroll

Descriptions of how a blind child can tell that Spring is in the air.

 


Book graphic.gif (3898 bytes)On Different Roads : An Autobiography by Geraldine Lawhorn

An autobiography written by a modern
 day Helen Keller.  Ms. Lawhorn was deaf
 and blind by the time she finished high
 school.  Her sense of humor and love of
 life shine through in this book.


Sarah's Sleepover by Bobbi Rodriguez

When the lights go out at this sleepover Sarah's blindness lets her help her cousins who are sleeping over.

 

 

 


The Secret Code (Rookie Readers) by Dana Meachan Rau

Eight year old Oscar teaches his friend Lucy how to read his Braille book.

 


Book graphic.gif (3898 bytes)The Seeing Stick by Jane Yolen

The story of Hwei Ming, the daughter of the Emperor of Peking.  The Emperor offers a fortune in jewels to the person who can help the young blind princess see.  A man brings a golden wood stick and uses to teach the princess and others that there is more than one way of seeing.


Ten Little Ladybugs
by Melanie Gerth

 

Young ones will love learning to count backwards as they touch ladybugs that disappear one by one with the turn of each page.


Touch the Top of the World
by Erik Weihenmayer


The inspiring biography of a young man with retinoschisis who was the first blind person to summit Mt. Everest.

 

 

 


RESOURCE LIST OF BRAILLE BOOKS FOR YOUNG CHILDREN

It is often very difficult to purchase books for a child who may not be a print reader.

ORGANIZATIONS THAT PROVIDE BOOKS FOR CHILDREN TO OWN

Braille-Books.com

Braille and Print/Braille books for children and adults.

www.braille-books.com

Century Series Braille Book Club
c/o American Printing House for the Blind
1839 Frankfort Avenue
Louisville, KY 40206-0085

Not a large selection available for very young children.

Expectations
Braille Institute Press
Braille Institute
741 North Vermont Avenue
Los Angeles, CA 90029

A free Christmas publication for grades 3 - 6

International Organization for the Blind
P.O. Box 656
Mount Dora, Florida 32756

Sells personalized print/braille books for children

www.io4b.org

National Braille Press
88 St. Stephen Street
Boston, MA 02115

Each title is offered only once!

Seedlings ... Braille Books for Children
P.O. Box 51924
Livonia, MI 48154
(800) 777-8552
email - seedlink@aol.com
http://www.seedlings.org

Extensive catalog available for young children with print/Braille/picture books, and print/Braille books.


ORGANIZATIONS THAT LEND BOOKS TO CHILDREN

Howe Press
Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02172

Kenneth Jernigan Library for Blind Children (Free Loan of Books)
A Division of American Action Fund for Blind Children and Adults
18440 Oxnard Street
Tarzana, CA 91356

Library of Congress (Free recorded materials with player)
National Library Service for the Blind and Physically Handicapped
1291 Taylor Street, NW
Washington, DC 20542

Volunteer Braille Services (Loan of books, fee involved)
3730 Toledo Avenue, North
Robbinsdale, MN 55422


OTHER RESOURCES

Directory of Visually Impaired Services

Primarily for Michigan residents, but helpful information for residents of other states. Charge is $5.00, copies may soon be available for other states.

The Visually Impaired Information Center, Inc.
P.O. Box 51207
Livonia, MI 48151-5207
(734) 421-6599

http://www.vi-info-center.org


Resources for Toys

NOTE: It is not necessary to buy toys that are specifically for children with visual impairments, but it is helpful to buy good toys, with a variety of materials and textures. Sound making toys can be helpful.

National Lekotek Center
(800) 366-PLAY (7529)
(Provides toys and instructions on how to use them chosen for your child specifically. There is an annual charge for this service.)
Back to Basics Toys
(800) 356-5360

 

Childcraft Education Corporation
(800) 631-5652

 

Constructive Playthings
(800) 448-4115

Enabling Devices
www.enablingdevices.com

Flaghouse
(800) 793-7900

 

Gifts for Grandkids
(800) 333-1707

 

Hand-in-Hand
(800) 872-9745

 

Hearth Song
(800) 325-2502
www.hearthsong.com

 

Kapable Kids
(800) 356-1564

Lakeshore Learning
www.lakeshorelearning.com

Learn & Play
(800) 247-6106
www.learnandplay.com

LS&S
(800) 468-4789

MaxiAids
(800) 522-6294

Music for Little People
(800) 727-2233

One Step Ahead
(800) 274-8440

Perfectly Safe
(800) 837-5437

Right Start
(800) 548-8531

Sensational Beginnings
(800) 444-2147

Sportime
(800) 444-5700

Wimmer Ferguson
(800) 747-2454


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